In the Genes

In the Genes

Don’t be frightened by this scary x-ray!  It’s not a Halloween decoration – it’s actually the inside of my Down syndrome son’s foot.   One of life’s “if I’d known then what I know now” moments can be explained here.  When I went for the amniocentesis that would tell...
Unique to Him

Unique to Him

Like any child, my Down syndrome son has a lot of behaviors that seem to be unique to his personality.  Not unique in that no other child has ever done such a thing, but that the way the behaviors combine adds up to something recognizable as just “so Joey”. When my...
In His Own Voice

In His Own Voice

For two-and-a-half years I have written about the life of my Down syndrome son.  I’ve carved descriptions out of words.  I’ve shared photos of his days.  The one thing I haven’t done is let him speak for himself.  I thought this month I’d let the experience of being...
Funnest Thing

Funnest Thing

When my children were little we had a goal to have regular outings with just the older two.  To let the focus be on them, we would leave our Down syndrome son with a sitter.  On one of the earliest of these they spent the whole time seemingly at each other’s throats....
Opportunity

Opportunity

We got a new car today and at the end of the 4 hours my Down syndrome son and I spent with the salesman he pulled me aside and said that he had enjoyed seeing my son’s personality shine through, attributing it to the way my husband (who came in at the 2 hour mark) and...
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