by Jane Thurston | May 18, 2017 | Jane Thurston--Down Syndrome Days
When my Down syndrome son was born, agency people and programs came rushing at me. One phrase kept being repeated: “You have to be his advocate”. “Yea, right!” I thought. “How can I go to battle for him when I don’t even understand what all these options are that...
by Jane Thurston | Apr 23, 2017 | Jane Thurston--Down Syndrome Days
The air is fresh, the sun is out, there’s a light breeze that’s just the right temperature. Greens are greener. Pinks, yellows, and reds are brighter. It must be spring again – a time when so many things take the chance to start over. When I saw the following...
by Jane Thurston | Mar 16, 2017 | Jane Thurston--Down Syndrome Days
Sometimes my Down syndrome son is not where he’s supposed to be but the story of missing him can end with a smile. In the process of writing last month about losing track of one’s child and the horror of “whereabouts unknown”, additional life stories of ours also...
by Jane Thurston | Feb 16, 2017 | Jane Thurston--Down Syndrome Days
I Can’t Find My Baby! You know that feeling when you can’t find your young child? Did you flinch and begin to feel that sinking feeling as you read this title? Everyone knows that first jolt of alarm when realizing that they’re unable to spot their little...
by Jane Thurston | Jan 20, 2017 | Jane Thurston--Down Syndrome Days
If we’d known how much we were going to enjoy him, those first few “down syndrome days” would have been very different. It isn’t that I thought we might not enjoy him, but in those first few days there was so much unknown that it did feel like we were navigating a bit...
