by Jane Thurston | Nov 24, 2015 | Jane Thurston: Down Syndrome Days
What does my Down syndrome son do with his time? I am so accustomed to his routine now that it just occurred to me that the way my son spends his time might seem remarkable to other people. Virtually every minute of every day when he is at home he is positioned in...
by Jane Thurston | Oct 15, 2015 | Jane Thurston: Down Syndrome Days
Finances . . . could we not talk about this please? I don’t like worrying about money, I don’t like thinking about money, and I don’t like planning for money. When my daughter was 11 years old she asked me: “What’s going to happen to Joe when you and Dad are gone?”...
by Jane Thurston | Sep 17, 2015 | Jane Thurston: Down Syndrome Days
More than a year ago we ‘aged out’ of my pediatrician’s practice as my youngest child passed age 18. We had moved to town just when my first child was born so at that time he had been the only person I spoke to on a regular basis – my only friend! I wrote...
by Jane Thurston | Aug 20, 2015 | Jane Thurston: Down Syndrome Days
Since last month when I reflected on how little people actually know my Down syndrome son I’ve had other thoughts come to mind about how different perspectives can be had on almost every subject or event. A person might be sitting on a bench enjoying what feels like...
by Jane Thurston | Jul 16, 2015 | Jane Thurston: Down Syndrome Days
Years ago a teacher told us that our Down syndrome son couldn’t make three word sentences but we had heard evidence to the contrary every day. I noticed last night that he spoke a sentence of at least 10 words. I don’t remember what it was exactly because it was just...
by Jane Thurston | Jun 18, 2015 | Jane Thurston: Down Syndrome Days
Over dinner one night there was discussion about the vicissitudes of life with my Down syndrome son and his level of cooperation in our household comings and goings when my sister-in-law asked: “There hasn’t been that many times you’ve missed doing something you...
