My Artist

My Artist

What does my Down syndrome son do with his time?  I am so accustomed to his routine now that it just occurred to me that the way my son spends his time might seem remarkable to other people. Virtually every minute of every day when he is at home he is positioned in...
Finances

Finances

Finances . . . could we not talk about this please?  I don’t like worrying about money, I don’t like thinking about money, and I don’t like planning for money.  When my daughter was 11 years old she asked me: “What’s going to happen to Joe when you and Dad are gone?”...
Doctors

Doctors

More than a year ago we ‘aged out’ of my pediatrician’s practice as my youngest child passed age 18. We had moved to town just when my first child was born so at that time he had been the only person I spoke to on a regular basis – my only friend!  I wrote...
What Is Real?

What Is Real?

Since last month when I reflected on how little people actually know my Down syndrome son I’ve had other thoughts come to mind about how different perspectives can be had on almost every subject or event.  A person might be sitting on a bench enjoying what feels like...
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